| Location | Newtongrange, Midlothian,scotland |
| Age | 3 years |
| Date of Birth | 4/2003 |
| Visitors | 2,613 since 21/11/2006 |
| Creator |
Rachel millar was our beautiful princess who died on Juesday 17th january 2006.She lived in a small
friendly village called Newtongrange with her twin brother Owen,older brother Dean and mum and dad.
Rachel was born on 5th April 2003 8 mins after her brother.She made a dramatic entry by emergency c
section but was worth every bit of pain.She grew up being a bossy little redhead who bullied her
brothers but could flutter her long eyelashes at any male in sight and melt their hearts.
Rachey as we called her reached every milestone up until 15 months.We noticed her walking
'funny'.After numerous visits back and forth for tests to hospital,on 30th June 2005 we
received the news that no parent should have to hear.Our precious little redhead was going to die!
Rachel had an incurable brain disease called 'metachromatic-leukodystrophy'. mld for
short.We read every possible piece of information we could but the outcome wasnt good.Late infantile
mld which Rachel had was the most common but also the most aggressive.She was unlikely to live past
5yrs, she would stop eating,talking,walking,have to be fed through a tube,go blind...the list was
endless.Not one positive thing-all bad.We were heartbroken.
Our family and friends rallied round.They were amazing each and every one.My sister Amanda and her
husband Mark were truly remarkable.They doted on our angel as much as we did and to this day dont
know how we would have coped without them.
Mld progressed quickly.Within a month our angel couldnt talk or eat.She had a tube put up her nose
to her stomach to feed her.We adapted easily to our new life of caring 24/7 for our baby girl.The
boys were wonderful.They seemed to know that Rachel was special and never once complained about
anything.
Kind hearted locals organised charity events for Rachel.Too many to mention but we will never forget
their kindness.One organisation that really touched our hearts was Pigeon Basic.T hey were all so
kind.The tributes for Rachel were amazing. We went on a family holiday to Eurodisney.It was so good
to see the kids so happy.Memories that we will keep in our hearts for ever.
Rachey went in for an op to put a tube through her tummy to feed her.Worst thing ever.She never
truly got over it.Every week she got weaker and weaker.We were invited to Lapland which the
charity'When u Wish Upon A Star' organise each year for children with life shortening
illnesses.Unfortunately Rachel was to ill to go but thanks to the wonderful people who organise it
Owen was able to go.By christmas she was so ill it broke our hearts to watch her.The hardest part
was knowing that her brain worked perfectly it was her body that was breaking.Christmas came and
went along with endless visits to the A and E dept at The Sick Kids.After a rather bad bout of
pneumonia our baby girl passed away very peacefully in her own home.We gave her a send off fit for a
princess.At last she was at peace..We love and miss u more than life itself Rachey xx
The song we chose for Rachels page is a beautiful song by Sherrie Austin called Streets of Heaven.
For more information on MLD please login to http://mldfoundation.com/
My
Rachel is gone
How can it be?
The joy of my life is gone from me
A Year has passed
And the tears still flow
I’m not understanding why she had to go
Her smiling face
A joy to behold
She was so strong
She was so bold
She fought so bravely
Never giving in
Through the pain and the suffering
She kept that grin
Touching so many lives with her caring and giving
Her amazing spirit will keep on living
My daughter, My Friend
It’s so hard to go on
Without you beside me
So much is gone
I’ll try hard to be strong
And keep trying to smile
As I make this journey
Mile by Mile
Hoping and waiting for the time to fly
Till I am with you again and no longer cry
I Love You, I miss you, your laughter, your smile
I am on my way to you
Mile by Mile
cant believe its nearly a year since u left us baby xxxxxxxx
Thank you for taking the time to read Rachels story. Please feel free to light a candle or leave a
tribute.They are very comforting to us all.
Another Christmas Without My Princess
Another year has come and gone,
And still i miss u so,
The aching deep within my heart,
It never seems to go..
Its always worse, i dont know why,
At this special time of year,
Knowing you should be here with us,
Full of Christmas cheer..
I always lay your special gift,
Under the sparkling tree,
And hope and pray on Xmas Day,
You come to visit me..
Just to feel you by myside,
A shadow passing through,
Will make another Christmas Day,
More bearable without you...
Merry Christmas my beautiful little Angel xxx
you really are a beautiful girl and i feel very honoured to have met your mummy and seen so may photos of you and your family, you sweet little girl, play happily now.
x
nobody has left somehting in ages so i though i would.Im stayin at ma friend caitlins house tonite and i dont know wat it was tht brough tu into the conversation but i showed her this site and she was crying she thought it was so sad nd so do i :(
we all miss you so much x
We walk the same world......
I lost my little Mikayla in August 2007 to this cruel disease, she was 2yrs 9 months.
Our stories are very similar,
may you know that im thinking of you and our precious angels are in heaven together
(probably running around having a lovely time)
Love and thoughts to you and you family
xxxxx
mikayla-laurenson.memory-of.com
godbless
HEARTBREAKING!! i cant stop crying =[.
i have a 2 year old daughter and could never imagine life without her. you must be so strong.
i lost my other baby girl to sids when she was 3 weeks old and i miss her very much. but 2 years old =[ im so very sorry for your loss, such a little princess she was & still is in heaven.
love to her family & especially her twin.xxxx
godbless.
julia, baby emmie-lee's mummy.x
Bye Bye Bright Eyes
There are no words in the world
To say how much we are missing you
We'll miss yor lovely curled hair
With your lovely caring stare
As we lay you down to rest
Thats when we realised
You were one of the best
Along with your brother Owen Millar
You lived such a short little life
But all in all you got our love
Now you high up above
Sharing all your precious love
Goodnight Princess ♥♥
Rachel
My baby she has gone away and never will i see,
Her precious little chubby face or hear her call on me.
Its hard to understand God,
Why u took her from her home,
Its left a gap no-one can fill and made me feel alone.
If u gave me 1 last wish ,I know wot it would be,
To bring my baby girl back home,
But let her b pain free.
She was a bubbly baby,
With the brightest eyes so blue,
With loads of curls on her red head,
I know u'd love her too.
But as my wish will never be,
All i ask of u,
Is look after my precious little girl,
And love her as i do.....
Sent with love for Rachel's mummy xx
I have a little daughter, who means the world to me
She's living with the Angels and is as special as can be
And even though she's up there, playing in the clouds
She's still my precious daughter and I am so very proud
Her picture takes pride of place on my living room wall
Ready to be admired by all who come to call
I know I can not hold her, or bounce her on my knee
But I only have to close my eyes, her little face to see
I never will stop missing her and wishing she were here
But sometimes I feel, indeed I know that she is very near
So play happily my little daughter, you will never be forgot
I love you so and always will, though I miss you such a lot .
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